Living with ALS Resource Guides
What is ALS? An Introductory Resource Guide for Living with ALS
This resource guide provides an overview of ALS, what it is, and how it affects your body. It provides information on what kind of resources are available to help you deal with ALS more effectively.
After the ALS Diagnosis: Coping with the “New Normal”
This resource guide addresses the psychological, emotional, and social issues that you must face when your life is affected by ALS. It provides information on how to cope with the many lifestyle changes and adjustments that occur when you live with ALS.
Changes in Thinking and Behavior in ALS
This resource guide addresses how thinking and behavior may be affected by ALS and how these changes can impact disease course, symptom management, and decision making.
Living with ALS: Planning and Decision Making
This resource guide reviews areas where careful planning and decision making will be required and will provide you with resources to help you and your family plan for the future.
Understanding Insurance Benefits When You Have ALS
This resource guide provides strategies and helpful hints to better navigate health insurance and benefits. While understanding insurance and benefits may feel overwhelming, the guidelines outlined here should help simplify the process for you.
Managing Symptoms of ALS
This resource guide discusses a variety of symptoms that may affect you when you have ALS. As the disease progresses, various functions may become affected and it is helpful to understand potential changes so that you know what to expect and how to manage these new changes and symptoms.
Functioning When Mobility is Affected by ALS
This resource guide covers the range of mobility issues that occur with ALS. It discusses exercises to maximize your mobility, as well as how to adapt your home and activities of daily living to help you function more effectively.
Adjusting to Swallowing Changes and Nutritional Management in ALS
This resource guide will help you understand how swallowing is affected by ALS and what you can do to maintain nutrition for energy and strength and to keep your airway open.
Changes in Speech and Communication Solutions
This resource guide covers how speech can be affected by ALS and explores a variety of techniques, technologies, and devices available for improving communication. By maintaining communication with others, you continue to make a significant difference in their lives, while retaining control of your own.
Adapting to Changes in Breathing When You Have ALS
This resource guide explains how breathing is affected by ALS. Specifically, it will teach you the basics of how the lungs function, the changes that will occur, and how to prepare for the decisions that will need to be made when the lungs need maximal assistance.
Approaching End of Life in ALS
This resource guide examines thoughts and feelings about dying and end of life. Approaching end of life is difficult and support is critical to help sort out feelings, expectations, and plans. By talking to friends, family, professionals, and planning and communicating your wishes, you can help prepare for the best possible end-of-life phase.