Each month, a member of the Chapter’s experienced care team answers three questions about ALS and their role in supporting ALS families.
How does a Chapter social worker assist an ALS family when there is a new diagnosis?
Social workers support the patient and family throughout their ALS journey. We explain how to register with the Chapter and educate them about the many services that are available to them. We also discuss the importance of attending an ALS multidisciplinary clinic and explore the many Chapter resource groups so they can see what works for them. A social worker can also offer home visits and create a plan that fits their immediate and long-term needs. An ALS diagnosis can be stressful and scary, but our social work team is there for you from day one.
With Valentine’s Day this month, what do you see as the value of personal relationships when it comes to the health and well-being of people with ALS?
Personal relationships are vital to the care and mental health of those living with ALS, as well as for their caregivers. These relationships provide love and support to get them through the struggles and tough times of ALS. Having those close connections makes such a difference in their lives, which is why the Chapter works so hard to assist not only the person living with ALS, but those around them with events like our outings at Knoebel’s Amusement Resort and Longwood Gardens.
What do you do as a social worker to help ALS caregivers? What programs do you recommend for them?
Our team of experience social workers provides support for ALS caregivers every day. We remind them to take care of themselves so that they can take care of their loved ones. Social workers listen to caregivers and offer them an outlet to vent their concerns and frustrations, connect them to resource groups, and offer guidance. If you are impacted by ALS in any way, we are here for you.