Become an Advocate

As an ALS Association Advocate, you can help change the laws and policies that affect thousands of persons with ALS and their families.

What is Advocacy and why is it important?

Advocate: noun
a person who publicly supports or recommends a particular cause or policy.

The ALS Association Greater Philadelphia Chapter is a leader in advocating for policies that would improve the lives of those living with ALS, their families and caregivers. Our strength derives from those with ALS and their family members whose involvement in advocacy has led to increased federal funding for ALS research, passage of the Medicare waiver for ALS patients, the presumptive disability ruling from the Social Security Administration, and state funding in both Pennsylvania and New Jersey.

How You Can Help

Because ALS still has no cure, there is still much to do. To continue advocating, we need your support.

Our advocates are passionate about encouraging government officials at all levels - state, local, and federal - to improve awareness and resources for people affected by ALS. Advocates are people who affect real change in the way that our government responds to the needs of the ALS community.

Even if you aren't a friend, relative, or supporter of a legislator, your outreach can help open doors. Advocates with the ALS Association help change the laws and policies that affect all people with ALS and their families every single year.

Become an ALS advocate today! If you are interested in donating your time or money to The ALS Greater Philadelphia Chapter, you can also donate or sign up to be a volunteer.

Mary Gay Scanlon

Fund Quality ALS Care at the State Level

The ALS Association Greater Philadelphia Chapter advocates for full funding of ALS care services at the national and state level. Through the power of personal advocacy, the ALS community has achieved significant funding for ALS care in Pennsylvania, New Jersey, and Delaware, which totaled over $2.5 million from these state budgets in FY 22-23. Our goal is to sustain and grow this funding and search for more ways to benefit the ALS cause at the state level.