The ALS Association Greater Philadelphia Chapter supports approximately 100 patients and their families in the Lehigh Valley at any given time. Our trained professionals and support staff cover all the bases through research, advocacy, and patient services. Patients and families in the area use the ALS Association Clinic at the Lehigh Valley Health Network and rely on the Greater Philadelphia Chapter for our specialized services and programs to help them live fuller lives with ALS while joining together in hope for a cure.
Walk to Defeat ALS(R)
The ALS community comes together in Allentown each year at the Lehigh Valley Walk to Defeat ALS (R), which raises hundreds of thousands of dollars each year to help fund critical ALS programs, such as the ALS Association clinic at the Lehigh Valley Health Network. Families from throughout our region attend to raise money, raise hope, and build a community dedicated to fighting and defeating ALS. The next Lehigh Valley Walk to Defeat ALS(R) is in October, 2014.
Click here to watch how the Walk to Defeat ALS(R) brings people together to strike out Lou Gehrig's Disease.
ALS Association Multidisciplinary Clinic at
Lehigh Valley Health Network
The Lehigh Valley ALS Clinic is one of the area's best resources for families living with Lou Gehrig's Disease. In one single visit, a person with ALS can see as many as nine specialists. The team is lead by Glenn A. Mackin, M.D., FAAN, FACP, a neurologist who serves as Clinic Director. Other specialists include Jay D. Varrato, D.O.; Sarah Cline, RN; Mary Lang, RN; Care Manager; Amber Peffer; LPC Nutritionist; Bill Whipple RD, CDE, LDN; Speech Therapist Patty Schlegel MSCCC/SLP; Physical Therapists Kamille Sprenkle PT, DPT and Alynn Danni PT, ADP; Occupational Therapists Betsy Green OTR/L and Melissa Comstock OTR/L; Respiratory Therapist Virginia Butler RT; ALS Association staff Wendy Barnes MSW, LSW and Gail Houseman RN, CNS, BC. The Clinic is supported primarily through the Walk to Defeat ALS(R) and other generous contributors.
Lea R. Powell ALS Patient Services Program
The Greater Philadelphia Chapter is proud to offer extensive support for people living with ALS through the Lea R. Powell ALS Patient Services Program. People with ALS from the Lehigh Valley, such as Karen Delaney Shideleff, are able to receive care along every step of the way.
“The clinics make it very easy," says Karen. "In one appointment, you get multi-disciplinary care from a neurologist, physical therapist, occupational therapist, respiratory therapist, and a social worker. They are able to guide us in making important decisions about our care. The patient services offered through the Chapter are also great. They have loaner equipment like ramps and travel chairs. There is a huge emphasis on helping patients maintain independence and quality of life.”
Read more about Karen and her family's quest to be Delaney Strong.
The ALS Association Greater Philadelphia Chapter Covers All the Bases through Research, Patient Services, and Advocacy. Through the efforts of ALS Advocates, we have had amazing successes both nationally and locally. Congress has passed the FDA Safety and Innovation ACT, authorized millions of dollars for the ALS Registry and the ALS Research Project at the Department of Defense, promoted the National ALS Registry to collect critical data on Lou Gehrig's Disease, and made sure that people with ALS can receive the Social Security and Medicare benefits they need.
In Pennsylvania, thanks to efforts from Lehigh Valley Advocates, the state legislature passed a $300,000 line item in the 2012 PA state budget to go directly to ALS patient services, helping over 800 families state wide.
Click here to watch a video from Lehigh Valley Advocate Sarah Brendle and here to become a member of the ALS Patient Advocacy Coalition.
Corporate Sponsorship and Support
Businesses in the Lehigh Valley continue to be very generous in supporting the fight to defeat ALS. Companies like Majestic Athletic, Lehigh Valley Health Network, Lehigh Valley Dairy Farms, and the Lehigh Valley Iron Pigs go the extra mile to support people with ALS and their families. We are very grateful to the large network of businesses who have joined our fight.
Click here to watch a special video with Lehigh Valley Walk to Defeat ALS Chair Holly Bennett and Ferrous, the Iron Pigs mascot.
Support from the Philadelphia Phillies
The ALS Association Greater Philadelphia Chapter is proud to be the principal charity of the Philadelphia Phillies. For nearly 30 years, the Phillies have been a constant ally in our efforts to defeat ALS, raising over $14.3 million since 1984. The 2013 Phillies Phestival raised an amazing $860,731 to support ALS patient care, which helps fund things like the ALS Clinic in the Lehigh Valley.
Marilyn Condrack, who attends the Lehigh Valley ALS Clinic, took her grandson Nathan to the 2012 Phillies Phestival where they met some of the players and enjoyed a great experience.
Marilyn's story about living with ALS is available on our website, where she shares her background of living with Lou Gehrig's Disease and the help from the Phillies.