The ALS Association Greater Philadelphia Chapter supports over 300 patients and families with ALS in Philadelphia and the surrounding suburbs at any given time. Our trained professionals and support staff cover all the bases through research, advocacy, and patient services. Patients and families in the area use the ALS Association Certified Clinic at the Pennsylvania Hospital and rely on the Greater Philadelphia Chapter for our specialized services and programs to help them live fuller lives with ALS while joining together in hope for a cure. Our Chapter office is in Ambler, PA in the middle of Montgomery County.
Greater Philadelphia Walk to Defeat ALS(R)
The Walk to Defeat ALS(R) is The ALS Association's signature event. In 2014, the Greater Philadelphia Walk to Defeat ALS(R) raised over $500,000 and the Chapter's total from our seven Walks was over $1.5 million.
Click here to sign up for the Walk to Defeat ALS(R)
The ALS Association Greater Philadelphia Chapter is proud to be the principal charity of the Philadelphia Phillies. Ever since Chapter President Ellyn Phillips' mother Malvina Charlstein convinced the Phillies that "ALS belongs in baseball," there has been a strong partnership to cover all the bases for families living with Lou Gehrig's Disease. In 2015, the annual Phillies Phestival raised an incredible $786,146, bringing the total raised by the Phillies to fight ALS since 1984 to an amazing $16 million.
Read more about the Chapter's history here.
Patients, families, caregivers and other friends and allies join together every year to give voice to ALS issues in Harrisburg and Washington. In 2012, with help from local State Representative Bryan Cutler and others, the Pennsylvania state legislators listened to patient stories and approved a $300,000 line item for ALS patient services, a tremendous victory for patients and families.
On a national level, ALS advocates have successfully lobbied Congress to support millions of dollars in ALS research, reauthorize the Prescription Drug User Fee Act, support veterans diagnosed with Lou Gehrig's Disease, and to create the ALS Registry. As part of their partnership, the ALS Association and the Centers for Disease Control are conducting outreach activities nationwide to educate people with ALS and their families about the ALS Registry and provide them with important guidance, tools, and information.
Sign up today to join the ALS Patient Advocacy Coalition.
Lea R. Powell ALS Patient Services Program
The ALS Association Greater Philadelphia Chapter Covers All the Bases in fighting Lou Gehrig's Disease, and that includes a heavy emphasis on quality patient care. We provide a wide range of support through the Lea R. Powell ALS Patient Services Program, including our ALS Clinics, Resource Groups, Van Transportation, Respite Care, Home Care, Assistive Technology, Equipment Loans, and home improvements with the Cox Family Fund for Accessibility.
The Chapter is able to provide these services through generous support from the Philadelphia Phillies, the Walk to Defeat ALS(R) , Community Partner events, Named Funds, and other gifts throughout the year.
Click here to watch Paula Goldstein use her iPad to give a speech at a Community Partner Event.
Kids Help Fight ALS
Adults aren't the only ones working to defeat ALS. Young people are getting involved through advocacy, volunteering, events, and the Walk to Defeat ALS(R).
Read more with our Kidsletter
Click here for a story by David Cole about his visit to Harrisburg.