The ALS Association Greater Philadelphia Chapter supports approximately 50 patients and their families in Delaware at any given time. While Delaware may be considered a small state, the needs and concerns of those patients and families are vitally important. Patients from Delaware frequently use the ALS Association Certified Clinic at Pennsylvania Hospital and they rely on the Greater Philadelphia Chapter for our specialized services and programs to help them live fuller lives with ALS while joining together in hope for a cure.
Rehoboth Beach Walk To Defeat ALS(R)
The ALS community comes together in Delaware each year at the Rehoboth Beach Walk to Defeat ALS, which raised over $131,000 in 2012. Families from throughout the state attend to raise money, raise hope, and build a community dedicated to fighting and defeating ALS.
The 2012 Rehoboth Beach Walk to Defeat ALS included many inspiring teams and stories, including 11 year old Kayla Wilson, who raised over $1,100 in honor of her Aunt Pam, who was recently diagnosed with Lou Gehrig's Disease. You can click here to read her story on our blog.
Scott A. Mackler Assistive Technology Program
Delaware is also home to Scott Mackler, MD, PhD, who established the Chapter's Scott A. Mackler, MD, PhD, Assistive Technology Program to make sure that all people with ALS could have the tools they need to live fuller and freer lives. This program includes evaluations at our ALS Association Certified Clinics, call bells to help a patient alert a caregiver, letter and picture boards, and devices to help with communication. Click here to learn more about the Scott A. Mackler, MD, PhD, Assistive Technology Program.
We are fortunate to have an amazing group of advocates in Delaware. Each May, our advocates travel to Washington, D.C. to meet with the Delaware delegation as they make the case for funding ALS research. In the state capital, with the help of the Mackler family and others, we are working to expand access to ALS patient care services. You can add your voice as an ALS Advocate and help our Chapter cover all the bases in our fight.
Click here to learn more about Delaware advocacy and watch as Kayla Wilson speaks to the Delaware State House.
Supporting Military Veterans
Did you know that military veterans are twice as likely to develop ALS as the general population? While researchers do not yet fully understand the link between military service and Lou Gehrig's Disease, The ALS Association does make sure to recognize the service of these men and women. That includes Delaware resident and Navy veteran Keith Canady. If you know a veteran with ALS, make sure to visit our Wall of Honor and share their story today.
Families with ALS living in Delaware are very connected to the ALS Association community. They know that they never have to be alone in their journey with ALS and that together we have reason to hope for quality services, new treatments, and, one day soon, a cure for Lou Gehrig's Disease. Christina and her husband Chuck Morris of Delaware, who is living with ALS, have shared their stories about the challenges of ALS and the programs available through the Greater Philadelphia Chapter.
Click here for Christina's story about the Howard I. Abrams In-Home Care Program
Click here for Chuck's story of living with ALS and caring for a family.