Get Involved With Advocacy in New Jersey

The Greater Philadelphia and Greater New York Chapters of The ALS Association are working together to seek funding and support from elected leaders in New Jersey. In Washington, we have had strong support for The ALS Registry and the ALS Research Project at the Department of Defense from both New Jersey Senators and Congressmen such as Rush Holt and Chris Smith. In Trenton, we have developed relationships with members of the legislature such as John Burzichelli, Pamela Lampitt, Troy Singleton, and Mary Pat Angelini. With the help of ALS Advocates across the state sharing their stories, we hope to garner support to fund essential patient care services for the over 500 people living with ALS in New Jersey.

Over the course of the coming year, we must reach out to every legislator and request their support for this important effort. If you would like to receive regular email updates regarding these issues, or if you have any questions about this effort, please contact Tony Heyl at (215) 643-5434 or tony@alsphiladelphia.org.

Watch video below of Tom Phelan, a person with ALS from New Jersey, to understand more of why Advocacy is important.